Opportunities to Get Involved
There are often opportunities to help raise awareness of psoriasis, contribute to projects and initiatives, and share your experiences.
Listed below are various opportunities that the Psoriasis Association, or other organisations, are looking for people to get involved with. If you are interested in getting involved in psoriasis research, please see the Research pages on the main Psoriasis Association website.
Please note, some of these opportunities may only be available to people aged 18+. If you are under 18, please contact us to see whether or not this applies to the particular opportunities that you are interested in.
Support the PsoProtectMe registry by sharing your hopes and fears about your psoriasis for life beyond the COVID-19 pandemic
The team behind the PsoProtectMe psoriasis and COVID-19 registry would be interested to hear more about your hopes and fears relating to your psoriasis as you look to the future beyond the COVID-19 pandemic.
Have you been unable to get the care and treatment you needed for your psoriasis during the pandemic and you're looking forward to having a face-to-face appointment with your dermatologist again? Or perhaps your psoriasis has been well-controlled during the pandemic and you're anxious about how re-adjusting to life in the outside world may impact your skin?
However you're feeling about the future, we would love to hear from you!
Would you be happy to share a quote and/or a short written piece (250 words or less) about your thoughts? Would you be happy for these to be published (including on social media) in order to raise awareness of psoriasis and the PsoProtectMe initative?
If so, please contact dominic.urmston@psoriasis-association.org.uk to register your interest in taking part.
Please do get in touch whether you have already taken the PsoProtectMe survey or not.
Join a project group to help shape dermatology services in Lancashire and South Cumbria - EXTERNAL OPPORTUNITY
NHS Clinical Commissioning Groups in Lancashire and South Cumbria (with the exception of West Lancashire), who buy health services on your behalf, are looking to procure new dermatology services and as part of the procurement, they would like to recruit some patient reps to help them shape how the services will look in the future.
The project group will meet online monthly for the next 12 months for around an hour. They will provide training and support to any patient reps so you don’t need to worry if you haven't done anything like this before. The patient reps will help design surveys, new patient materials, website content etc.
If you would like more information before committing to become a patient rep, please contact Bwdandeast.lancscomms@nhs.net.
Share your story with us
Are you inspired by other people's stories and interested in sharing your own experiences of psoriasis and/or psoriatic arthritis? Would you like your story to be featured on our website, and on our social media channels?
We are looking for...
- Your story of life with psoriasis or psoriatic arthritis (or both) in your own words
- Ideally 400 words or less (if you want to write more, that's fine too)
- A photo of yourself to accompany your story (you can provide as many photos as you like)
If you're interested in taking part and sharing your story, or you'd like more information about the project, please contact us at mail@psoriasis-association.org.uk.
Additional Opportunities
We are always looking for volunteers who would like to help us with our work whether this is by becoming a media contact, reviewing our information or speaking at events or conferences. If you would like to be involved with any of the opportunities listed below please fill in this form and send it to mail@psoriasis-association.org.uk.
Whilst we try our best to match all of our volunteers with relevant opportunities, please keep in mind that due to the specific requirements of some requests we cannot guarantee you will be contacted.
Become a media contact
We often receive requests from journalists at newspapers and magazines, or production staff at TV companies looking for case studies. Sometimes we also contact the media ourselves to raise awareness of Psoriasis Association events and achievements. If you’d be willing to share your experiences of psoriasis or psoriatic arthritis and raise awareness through the media, let us know.
Review our information
We're committed to producing high quality information about psoriasis and receiving feedback from people living with the condition is key to ensuring our information is accessible and easy to understand.
We regularly produce new information sheets and leaflets about psoriasis, psoriatic arthritis and their treatments and we are looking for people based in the UK who would like to feedback on our new and existing information.
Volunteer to be an event speaker
Occasionally we need people with psoriasis or psoriatic arthritis to share their experiences at an event such as a conference or lecture, support group or meeting. If you might be interested in any opportunities to tell an audience about your psoriasis let us know.
Join a consultation panel
Join a consultation panel if you’re happy to be contacted to offer your opinion or comment on anything from our own services and literature to taking part in industry or academic initiatives.
Distribute our posters or leaflets
If you’d like to take our literature into your local GP surgery or Dermatology clinic, do let us know and we can send you some information to distribute.
Join our Research Network
To receive emails with opportunities to take part in or to help shape psoriasis research sign up to our Research Network. Please note, these opportunities may come from third parties e.g. academic researchers as well as from the Psoriasis Association.