Your stories

Posted Fri 2 Feb 2018 6.31am by Simon.hope98
Hi my name is Simon, I’m 19 and have had psoriasis since the age of 8. I’ve been through treatments and would like to help people!

Hey guys,

I’m curious to see if your stories are similar to mine. I’m a 19 year old uni student who has had psoriasis for 10 years. It started after my nan passed away. I guess the stress of losing my nan and being confused on my sexuality started the first spots to grow. Then after that I lost other grandparents and it got worse. I remember I was going through secondary school and slowly I started to cover myself up more and more. Getting changed in P.E was a nightmare. The whispers and laughs were torture. When I went into sixth form the hospital finally decided I was of age to have treatment. I was on phototherapy which didn’t work for me. Then I was put on the tablets circlsporin which helped massively. Gave me a year break from it as I had no skin. Enough of a break to meet my uni friends. Now I’m seeking the tablets again. I have 60-70% coverage over my whole body including on my scalp and nails. But I tell my story to help others. I want you guys to pull strength because this condition is bad but you can still be the true you. If you feel depressed it is okay to feel that. But there are people who understand. Friends and family are there. Don’t push them away.

If you have any questions guys, don’t hesistate to reply.

Thanks

Simon

Posted Thu 17 May 2018 2.53pm by Lulu139 (edited Thu 17 May 2018 2.55pm by Lulu139)

I was 13 when diagnosed with psoriasis i am 17 currently. It all started when I had bad acne and was taking a tablet to dry them out, I found a small patch of dry skin thinking it was caused by the tablets and within two weeks my whole face was covered! Going to school was hard as I tried covering it up with makeup and had a bad habit of scrubbing my skin as I didn’t know what it was at this point. Boys at my school would ask why my face was peeling and I would feel incredibly self conscious. I got to such a low point that I didn’t want to go out and I was crying all the time. When I finally got a hospital appointment with a dermatologist (for acne) and got diagnosed I was so glad to be getting it sorted. I was perscribed steroid creams for my body and had phototherapy for 2 months and all seemed to clear up! Only recently has it started to come back on my face, behind my ears and in my hair again and I feel that this has been triggered by anxiety and stress which is out of my control and feel like nothing is really working for me anymore. When I was 13 I used steroid creams on my face as I wasn’t told I couldn’t but now I know I try not to go near them with my face. Just knowing that other people know what it’s like to not feel confident in your own skin is so much easier to deal with :) my boyfriend and Mum are very supportive and tell me not to worry because I only have a small amount at this moment in time, but I think I’m more worried about it getting as bad as it was when I was 13.

Posted Sat 18 Aug 2018 1.16am by anielapellant
Hi my name is Aniela and I have been suffering with Psoriasis since I was 11. Have been bullied in school. Really sucks to have Psoriasis😕

Hi. I was 11 when I first got diagnosed with Psoriasis. Since, I have been using different creams on my head and on the patches on my body. Recently I have discovered that staying in the sun as much as possible helps it. But, if your Psoriasis goes in the sun, it may come back in the wintertime and Autumny weathers. Also, if you have not been prescribed any shampoo’s, I really recommend using T-Gel. I shower with it every morning before school to make sure I have worn down the dead-skin for the day.

In my first year of secondary school, I got questioned by a lot of people. Then, I only had small patches on my forehead and had it all over my scalp. I was bullied for having it on my forehead and often called gross by others for having bits of dead-skin all in my hair. I went through tough times and really getting down when it flaired up in places.

Luckily, my friends are really understanding about it and look out for me. They totally understand what I am going through as I have explained to them in detail what it is and what I can do to help it. In school if they see bits of dead-skin in my hair they will pick it out for me, making sure I don’t get too self conscious about it.

Make sure you explain to someone you trust and who is understanding about what you’re going through. You don’t deserve to be going through having Psoriasis alone. Having someone beside you helps a whole lot on your stress levels.

I hope my story has helped anyone.

To take part, sign in or register with us

The Psoriasis Association is the UK's leading national charity and membership organisation for people affected by psoriasis – patients, families, carers and health professionals Read More >

Get in touch

The Psoriasis Association Dick Coles House 2 Queensbridge Northampton NN4 7BF

Email: mail@psoriasis-association.org.uk

Tel :
01604 251 620
Fax :
01604 251 621
Registered with Fundraising Regulator -

© The Psoriasis Association Registered Charity: 257414 Scotland: SC039886 Privacy PolicyCookies

Site by Spoken Image | glitterfish

We use cookies to help us provide you with a better service, but do not track anything that can be used to personally identify you.

If you prefer us not to set these cookies, please visit our Cookie Settings page or continue browsing our site to accept them.