Psoriasis Awareness Week Archive

Take a look back at the activities of recent Psoriasis Awareness Weeks.

Psoriasis Awareness Week runs annually and aims to raise awareness of psoriasis and psoriatic arthritis. Click on the expandable boxes below to read more about our activities during Psoriasis Awareness Weeks of recent years.

Psoriasis Awareness Week 2018

In 2018 we put the spotlight on young people who are living with psoriasis and shared some of the information and support resources we have to offer, including our WhatsApp helpline service. We also launched a short video, 'The Itch Challenge' - can you sit through the whole video without having to scratch? Finally, we revealed the 'Psoriasis Top 10' research priorities - the culmination of the psoriasis Priority Setting Partnership (PSP) project, which many of you will have taken part in.

WhatsApp Service


In early 2018 we conducted a survey of 250 young people with psoriasis which highlighted the impact the condition can have on many aspects of young people's lives.

The survey revealed that 94% are affected by anxiety and depression, with 77% claiming that psoriasis has had a negative effect on their social life. Indeed, social isolation is clearly an issue in young people with psoriasis, as 67% claimed to feel isolated by their condition. Linked to this, 70% feel that their healthcare professionals don’t understand what it’s like to live with psoriasis, and 60% feel that family and friends don’t understand how their psoriasis makes them feel. Additionally, 47% are worried for their future, believing that psoriasis has or will have a negative effect on their studies or career.

As a result of what we found, we launched a brand new WhatsApp helpline service in order to make it easier to contact us and find information and support. You can access our WhatsApp service by messaging us on the app at 07387716439 between 9am - 5pm on Monday to Thursday, and between 9am -4.30pm on Fridays.

The Itch Challenge


Itch is still an under-recognised symptom of psoriasis, yet it can have a significant impact on quality of life! To highlight this, we're introducing the 'Itch Challenge' - have a watch of the video below and see whether you can make it through without needing to scratch!

Revealing the 'Psoriasis Top 10' Research Priorities


Following two years of consultation, the 'Psoriasis Top 10' research priorities were announced in Psoriasis Awareness Week 2018. This marked the culmination of the psoriasis Priority Setting Partnership (PSP) which was set up with the aim of bringing together people with psoriasis, their families and friends, and healthcare professionals in order to identify the areas which future psoriasis research should focus on.

Many of you will have taken part in the project yourselves, so we hope you were as excited as us to find out what the 'Top Ten' priorities were. Publishing these priorities should help ensure that future psoriasis research focuses on answering the questions that are most important to people who are affected by psoriasis.

So without further ado, here they are...

1. Do lifestyle factors such as diet, dietary supplements, alcohol, smoking, weight loss and exercise play a part in treating psoriasis?

2. Does treating psoriasis early (or proactively) reduce the severity of the disease, make it more likely to go into remission, or stop other health conditions developing?

3. What factors predict how well psoriasis will respond to a treatment?

4. What is the best way to treat the symptoms of psoriasis: itching, burning, redness, scaling and flaking?

5. How well do psychological and educational interventions work for adults and children with psoriasis?

6. Does treating psoriasis help improve other health conditions, such as psoriatic arthritis, cardiovascular disease, metabolic syndrome and stress?

7. Why do psoriasis treatments stop working well against psoriasis and when they stop working well, what’s the best way to regain control of the disease?

8. To what extent is psoriasis caused by a person’s genes or other factors, such as stress, gut health, water quality, or change in the weather / temperature?

9. Is a person with psoriasis more likely to develop other health conditions (either as a consequence of psoriasis or due to the effect of treatments for psoriasis)? If so, which ones?

10. What’s the best way to treat sudden flare ups of psoriasis?

Psoriasis Awareness Week 2017

In 2017, Psoriasis Awareness Week saw the launch of the 'Small Steps' campaign in conjunction with the See Psoriasis: Look Deeper collaboration. The campaign looked at the small, positive changes you can make to your lifestyle that might make a difference to your psoriasis.

Information Stands

A BIG 'thank you' to the team at Guy's Hospital in London for setting up this fantastic information stand to mark World Psoriasis Day and Psoriasis Awareness Week!

The stand included awareness posters and information leaflets from the Psoriasis Association, as well as materials to promote the APRICOT and PLUM pustular psoriasis studies. 

These studies are being coordinated by the team from St John's Institute of Dermatology, which is based at Guy's Hospital.

Thanks also to the team at the Belfast Trust, who set up this colourful information stand outside Wing D of the Outpatients Department at Belfast City Hospital.

Once again, awareness posters and information leaflets from the Psoriasis Association were on display!

These information stands are invaluable in helping to raise awareness of psoriasis and psoriatic arthritis, as well as providing information and the chance for people to stop, chat and ask questions.

Psoriasis Awareness Week 2016

Psoriasis Awareness Week 2016 saw the launch of the PsoriasIS campaign, where we asked people with experience of psoriasis to share what the condition means to them. We also launched the original film, 'Psoriasis - The Skin I'm In', which tells the real life stories of people living with psoriasis. Finally, we held an Awareness Day at a local superstore to speak to shoppers about psoriasis and psoriatic arthritis.

Read on to find out more about the campaign, watch the film and view images from the Awareness Day.

The PsoriasIS Campaign


logo 1The PsoriasIS campaign encouraged everyone with experience of psoriasis to speak up about what the condition means to them. We heard from people living with psoriasis themselves, people who support a loved one living with psoriasis, medical professionals who treat people with psoriasis, and researchers who study the condition.

PsoriasIS… Treatable?
PsoriasIS… Life-changing?
PsoriasIS… Something I wish I knew more about

We asked people who wished to take part to print off a copy of our PsoriasIS logo, write what psoriasis means to them beneath it, take a photo of themselves holding the message (or just the message itself) and send it to us. 

We compiled a gallery of all the images we received, which you can view below.

Thank you to everybody who took part in the campaign and shared their thoughts about psoriasis. We feel that the gallery of photos below helps to demonstrate the various different ways that psoriasis impacts people's lives. It also reinforces the fact that psoriasis is different for each individual.

'Psoriasis - The Skin I'm In' Film Launched


Born out of collaboration between Dr Sandy McBride, Consultant Dermatologist, and storyteller Sarah Sutcliffe, ‘Psoriasis – The Skin I’m In’ is an original film made in association with the See Psoriasis: Look Deeper campaign, which looks at the wider life impact of psoriasis including emotional well-being and mental health. The film tells real life stories of people living with psoriasis.

Awareness Day


At the end of October, we held a Psoriasis Awareness Day at Asda Milton Keynes Supercentre. We set up a stand by the checkouts in the store and spoke to shoppers throughout the day about psoriasis and psoriatic arthritis.

It was a great opportunity for us to speak to people face-to-face, give out our information leaflets, and raise awareness. It was interesting to hear people's different experiences first-hand, and we are grateful to those who contributed their thoughts to our PsoriasIS campaign.

  • Awareness Day 2
  • Awareness Day 3
  • Awareness Day 1
  • Awareness Day 4

Psoriasis Awareness Week 2015

Psoriasis Awareness Week 2015 focused on helping people with psoriasis to be aware of psoriatic arthritis (PsA). It saw the launch of a campaign called 'Ps.Arthritis', which was specifically aimed at raising awareness of psoriatic arthritis. The campaign was a product of the 'See Psoriasis: Look Deeper' collaboration of which we are a part. 

Alongside the 'Ps.Arthritis' campaign, we also shared some individual accounts of young people living with psoriatic arthritis. You can read these unique accounts by clicking on the links below.

Pamela's story, Hannah's story

Pamela's Story


World and Paralympic Rowing Champion, Pamela Relph MBE  tells us about her experiences as an athlete living with psoriatic arthritis...

I have suffered from psoriatic arthritis since the age of 7, but already a sporty and active child, I was never going to let my condition slow me down. Growing up I had to overcome weekly medical appointments, injections, different medications all alongside the usual symptoms such as fatigue, chronic pain and stiff joints to name a few. Now these are just as normal to me as making a cup of coffee in the morning and they form a very mundane but necessary part of my life. 

Since 2011, I have been a rower on the GB Rowing Team. Having suffered with psoriatic arthritis from such an early age, I have been left with my right wrist fused and limited function in my right hand. This disablement means that I classify for Paralympic Rowing in the LTA4 category, rowing amongst athletes with similar minimal disabilities like mine such as fused ankles and visual impairments. 

A lot of people may think that a condition like psoriatic arthritis doesn't really lend itself to a career as a full time athlete. It hurts to move my joints and I am tired all the time - so how do I manage to exercise for upwards of 4 hours a day? Anyone taking immunosuppressant medication will know that this medication works by limiting your body's ability to attack itself by dampening down your immune system. What people might not know is that exercising a lot has a similar effect: that is why athletes are very susceptible to illness. So I have a medication regime that is targeting my disease from the inside and my training regime adds to this. 

I see myself as one of the lucky ones as the psoriatic element of my condition is something that only becomes problematic during flare ups. When I do have a flare up, my arthritis will stop me in my tracks. It becomes impossible to train and the only thing I can do is rest and recover and wait for the storm to pass. When in a flare I spend a lot of time sleeping and can easily sleep for 12-13 hours a night as opposed to my usual 9 hours. 

Before I started rowing the idea of being a full time athlete scared me. I was in a very bad place with my condition and the idea of exercising 2 or 3 times a day, every day, seemed impossible. However the truth is that my condition has never been better and with Rio 2016 Paralympic Games just 11 months away, I am training harder than I ever have before. I still have the pain and fatigue and sometimes a flare but the good days are so much better than before. I am healthy and when my condition allows it I am able to do really incredible things with my body.

Hannah's Story


Hannah Parkin shares her journey: from being diagnosed with psoriasis to living with psoriatic arthritis...

I was diagnosed with psoriasis when I was teenager, about 15. The dry red patches popped up all over my body, within a year I had large areas of active plaque psoriasis on my arms, legs and body. As a teenager this was quite distressing. I often wore long sleeved, long legged clothing to cover up the affected areas. When it developed into my scalp, I wore hats a lot but it didn’t stop the fall out of skin from my hair and people often thought I just had really bad dandruff. 

I wasn’t very confident as a teenager and didn’t really want to get to know too many people as they would comment on the condition of my skin. As I got older I got used to the problems. I did my own research to understand what the problem was so I could explain, and used creams when needed during a flare up. I coped rather well for years like this. 

When I was 25 I developed painful joints. I work as a radiographer which involves a lot of long shifts on my feet and using heavy equipment. Within 3 months of the first pain I couldn’t put my foot on the floor without being in agony. I was referred after 6 months of this to a rheumatologist who diagnosed active psoriatic arthritis in several joints and I was immediately put on medication. 

The medication was awful. I felt sick a lot (something I personally have a phobia of), I was exhausted a lot of the time and due to pain I was unable to do the things I had enjoyed, like horse riding. It was a struggle to just go to work and I would come home afterwards just to crash out on the sofa. My relationship with my partner suffered as we had always been active. Now I was unable to do anything outside of work I became jealous and envious that he could. Eventually we split, I lost the house I had bought with him and had to start again. 

I don’t believe I was given the support required emotionally to deal with the news that I had a life changing disease, and the effect of medications on my body. I recently went back to the specialist and I currently don’t have active disease which is great. I am trying to re-build my life slowly but it’s always in the back of my mind that the arthritis could flare again. I feel a bit like a ticking time bomb at times.

The Psoriasis Association is the UK's leading national charity and membership organisation for people affected by psoriasis – patients, families, carers and health professionals Read More >

Get in touch

The Psoriasis Association Dick Coles House 2 Queensbridge Northampton NN4 7BF

Email: mail@psoriasis-association.org.uk

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01604 251 620
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07387716439
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